Request for Participants
To: Members of the MS/Cancer Support Group or any interested person dually diagnosed with MS and cancer
From: Margaret Barney, Director, MSplus Foundation
Re: Information gathering for analysis of medical records of persons dually diagnosed with MS and cancer
This year, we are dedicated to assemble medical information from those of you who participate in our monthly conference call. The purpose is to compare our medical histories and to make any observations that might surface. As far as we know, a study like this has never been attempted. [More]
NARCOMS Patient Registry helps research, patients
On the February MS/Cancer support group conference call, participants learned about the North American Research Committee On Multiple Sclerosis (NARCOMS) Project, what services it provides and the need for MS patients to participate. This self-help support group is sponsored by the National MS Society and the American Cancer Society.
Dr. Tuula Tyry, NARCOMS program manager, said the organization's main purpose is to expedite multi-center research on multiple sclerosis. [More]
Flying Wheels Travel
Flying Wheels Travel provides people with physical disabilities, chronic illness or difficulty walking the opportunity to extend their lifestyle with unique travel and recreation destinations while empowering individuals and their family members to explore the world.
MSHelp.org Donor Closet
A Wonderful Resource!
The purpose of the "DONOR CLOSET" is to recycle used DURABLE MEDICAL EQUIPMENT (DME) & MOBILITY EQUIPMENT from people who no longer need or use the item. Many have up-graded, moved on to a more useable item, or otherwise no longer require the item. They donate the item to a person who needs it and has no financial means of purchasing it, or has been denied by an insurance company or government agency. [More]
MS Learn Online
Providing quality information and convenient access
Since its first broadcast in 1999, MS Learn Online, the National MS Society's Internet program, has been a successful way to educate about multiple sclerosis. View pre-recorded webcasts to learn more about MS from the convenience of your own home. Programs cover a wide variety of topics such as information for people newly diagnosed, MS basic facts, symptom management, employment, intimacy, care-partners, and progressive MS.
Each program may include:
New MS Learn Online webcasts are also available as podcasts. [More]
- Audio broadcast
- Slide presentation
- Program transcript (PDF format)
- Technical support instructions
- Additional resources
Let’s get physical
Exercise is important for everyone’s health, including those
with Multiple Sclerosis (MS) and cancer.
Jason Geroianni is a neuro-fitness specialist and executive
director of Pressing On, which is a non-profit gym in San Antonio, Texas, that offers
specialized exercise-based training program for those with paralysis due to spinal
cord injury, traumatic brain injury, MS, stroke and other physical
Geroianni said, “It always is important to stay active. We
recommend that people with MS and cancer exercise or be active 30 to 60 minutes
a day, five days a week.”
People who exercise regularly may notice several benefits including
improved strength, possible diminished fatigue and depression, help with sleep problems
and keeping mentally sharp.
However, MS patients need to be careful during exercise. [More]
MS/Cancer Support Group explores benefits of massage therapy
“Being on a massage table is a wonderful place to be for a
person with Multiple Sclerosis (MS),” said Denali Walden, a massage therapist
in Olympia, WA.
And Walden knows what she is talking about. She graduated
from massage therapy school with an emphasis on medical and injury treatment
techniques. She has continued her education in modalities related to MS and
volunteered for four years in a program that provided massages to cancer patients
and their caregivers.
Walden spoke to the MS/cancer conference call in February
about massage therapy for people with multiple sclerosis (MS). [More]
Affordable Care Act benefits MS patients
Advocacy at the Greater Northwest Chapter of the National Multiple Sclerosis
(MS) Society Jim Freeburg is educating people about the many advantages of the
Affordable Care Act (ACA), including people who have MS.
During the MC/Cancer telephone support group meeting on September 25th Freeburg said, “The
existing health care industry in this country is badly broken for people with
chronic diseases, is not available for everyone and is not coordinated. Those
are some of the many reasons why the reformed health care law was enacted in
coverage is important because everyone becomes ill at some point. When someone
doesn’t have health care coverage, everyone else has to pay for his or her care
through higher premiums.
requires everyone to have health care insurance, called the Individual Mandate.
If you are insured through your job, Medicaid or Medicare, you are not required
to make a change. If you are uninsured, you must purchase insurance for
yourself or pay a tax. [More]
Service dogs help with day-to-day living
Munro serves as president of the board of Summit Assistance Dogs, and owning a
service dog has changed her life.
Disabilities Act (ADA) defines a service animal as a dog that is individually
trained to do work or perform tasks for a person with a disability. Service
dogs have legal access to most public places such as stores, work places,
restaurants and public transportation when with their partners.
donates hours of her time telling the public and potential recipients about the
benefits and joys of owning a service dog.
said, “I am involved with informing the public about service dogs because I am
a recipient. [More]
Small Trial Shows Estriol, A Pregnancy Hormone,
Reduces MS Lesion Activity In Women With MS
Summary: In a small-scale, early-phase trial of the hormone estriol, a form of estrogen, women with relapsing-remitting MS showed decreases in MRI-detected brain lesion activity and immune responses during treatment, suggesting that additional study of estriol is called for to determine longer-term efficacy and safety.
- Women who have MS and are pregnant often experience fewer MS symptoms and relapses, especially during the second and third trimester. Because the hormone estriol is elevated during later stages of pregnancy, and mice given pregnancy levels of estriol were shown to have fewer symptoms of an MS-like disease, the hormone was considered as a candidate for testing against MS.
- Estriol was well tolerated. Six women with relapsing-remitting MS experienced significant decreases in brain lesion numbers and volume, as well as reductions in levels of immune proteins indicative of inflammation. [More]
CDC provides info about MS and Cancer risk
Dr. Matthew M. Zack of the Division of Chronic Disease and Health Promotion for the Centers for Disease Control and Prevention has provided extensive references from MEDLINE that show studies of the risk of cancer associated with multiple sclerosis since 1966. [More]