Request for Participants
To: Members of the MS/Cancer Support Group or any interested person dually diagnosed with MS and cancer
From: Margaret Barney, Director, MSplus Foundation
Re: Information gathering for analysis of medical records of persons dually diagnosed with MS and cancer
This year, we are dedicated to assemble medical information from those of you who participate in our monthly conference call. The purpose is to compare our medical histories and to make any observations that might surface. As far as we know, a study like this has never been attempted.[More]
NARCOMS Patient Registry helps research, patients
On the February MS/Cancer support group conference call, participants learned about the North American Research Committee On Multiple Sclerosis (NARCOMS) Project, what services it provides and the need for MS patients to participate. This self-help support group is sponsored by the National MS Society and the American Cancer Society.
Dr. Tuula Tyry, NARCOMS program manager, said the organization's main purpose is to expedite multi-center research on multiple sclerosis.[More]
Flying Wheels Travel
Flying Wheels Travel provides people with physical disabilities, chronic illness or difficulty walking the opportunity to extend their lifestyle with unique travel and recreation destinations while empowering individuals and their family members to explore the world.
MSHelp.org Donor Closet
A Wonderful Resource!
The purpose of the "DONOR CLOSET" is to recycle used DURABLE MEDICAL EQUIPMENT (DME) & MOBILITY EQUIPMENT from people who no longer need or use the item. Many have up-graded, moved on to a more useable item, or otherwise no longer require the item. They donate the item to a person who needs it and has no financial means of purchasing it, or has been denied by an insurance company or government agency.[More]
MS Learn Online
Providing quality information and convenient access
Since its first broadcast in 1999, MS Learn Online, the National MS Society's Internet program, has been a successful way to educate about multiple sclerosis. View pre-recorded webcasts to learn more about MS from the convenience of your own home. Programs cover a wide variety of topics such as information for people newly diagnosed, MS basic facts, symptom management, employment, intimacy, care-partners, and progressive MS.
Each program may include:
New MS Learn Online webcasts are also available as podcasts.[More]
- Audio broadcast
- Slide presentation
- Program transcript (PDF format)
- Technical support instructions
- Additional resources
Affordable Care Act benefits MS patients
Advocacy at the Greater Northwest Chapter of the National Multiple Sclerosis
(MS) Society Jim Freeburg is educating people about the many advantages of the
Affordable Care Act (ACA), including people who have MS.
During the MC/Cancer telephone support group meeting on September 25th Freeburg said, “The
existing health care industry in this country is badly broken for people with
chronic diseases, is not available for everyone and is not coordinated. Those
are some of the many reasons why the reformed health care law was enacted in
coverage is important because everyone becomes ill at some point. When someone
doesn’t have health care coverage, everyone else has to pay for his or her care
through higher premiums.
requires everyone to have health care insurance, called the Individual Mandate.
If you are insured through your job, Medicaid or Medicare, you are not required
to make a change. If you are uninsured, you must purchase insurance for
yourself or pay a tax.[More]
Service dogs help with day-to-day living
Munro serves as president of the board of Summit Assistance Dogs, and owning a
service dog has changed her life.
Disabilities Act (ADA) defines a service animal as a dog that is individually
trained to do work or perform tasks for a person with a disability. Service
dogs have legal access to most public places such as stores, work places,
restaurants and public transportation when with their partners.
donates hours of her time telling the public and potential recipients about the
benefits and joys of owning a service dog.
said, “I am involved with informing the public about service dogs because I am
Many MS patients can travel the world
Italy. Australia. Norway. Russia. People who are physically
challenged may wonder if they can visit these far off places, especially if
they use assistive devices, scooters or wheelchairs.[More]
Tips to help with day-to-day living
MS/Cancer Support Group members recently tips on how to make some of life’s challenges a little easier in the April conference call.
Margaret started the discussion by recommending InterDry, a moisture-wicking fabric with antimicrobial silver for the management of skin-on-skin irritation. InterDry helps minimize the itching and odor from yeast and bacteria, wicks assay moisture in skin folds and relieves burning and chafing from skin-on-skin friction.
One caller said she had bars installed at the head and foot of her bed. These made getting in and out of bed easier as she has something stable to hold onto.
To help prevents trips or falls, one participant always uses handrails when they are available and wears gripper socks at home to help prevent slips. Another said she wears slacks or a long skirt to keep from being embarrassed if she trips or falls.
One caller said she eats with a salad fork instead of dinner fork because it is shorter and easier to handle. She also used a pen with a gripper when writing.
Other helpful suggestions included the following:
Have a nightlight in each room can help maneuvering during the night.
Attach a lamp to your headboard to turn on whenever you get up.
Get adequate rest, because if you don’t, your symptoms may get worse.[More]
Small Trial Shows Estriol, A Pregnancy Hormone,
Reduces MS Lesion Activity In Women With MS
Summary: In a small-scale, early-phase trial of the hormone estriol, a form of estrogen, women with relapsing-remitting MS showed decreases in MRI-detected brain lesion activity and immune responses during treatment, suggesting that additional study of estriol is called for to determine longer-term efficacy and safety.
- Women who have MS and are pregnant often experience fewer MS symptoms and relapses, especially during the second and third trimester. Because the hormone estriol is elevated during later stages of pregnancy, and mice given pregnancy levels of estriol were shown to have fewer symptoms of an MS-like disease, the hormone was considered as a candidate for testing against MS.
- Estriol was well tolerated. Six women with relapsing-remitting MS experienced significant decreases in brain lesion numbers and volume, as well as reductions in levels of immune proteins indicative of inflammation.[More]
CDC provides info about MS and Cancer risk
Dr. Matthew M. Zack of the Division of Chronic Disease and Health Promotion for the Centers for Disease Control and Prevention has provided extensive references from MEDLINE that show studies of the risk of cancer associated with multiple sclerosis since 1966.[More]