Margaret Barney tells her story of MS and cancer
Margaret Barney, Executive Director of the MSplus
Foundation, told her story about being dually diagnosed with MS and then
Barney said, “I was diagnosed with Multiple Sclerosis (MS)
in 1979 but my symptoms first appeared in 1977 when I was 29, just a few weeks
after my only child was born.”
Barney said, “After my baby was born, I got home from the
hospital with blurred vision. This tipped me off that something was a little
bit wrong. [More]
MS/Cancer study seeks participants
Olivera Nesic-Taylor, PhD,
is studying the relationship between multiple sclerosis (MS) and breast cancer.
She is affiliated with the Texas Tech Paul Foster School of Medicine in El Paso,
Dr. Nesic-Taylor’s research
focuses on the following questions concerning MS and breast cancer:
Does MS decrease
or increase the risk for breast cancer?
treatments for MS affect the risk or symptoms of breast cancer?
treatments for breast cancer affect symptoms of MS?
What are the
next steps in researching the link between MS and breast cancer?
Flying Wheels Travel
Flying Wheels Travel provides people with physical disabilities, chronic illness or difficulty walking the opportunity to extend their lifestyle with unique travel and recreation destinations while empowering individuals and their family members to explore the world.
MSHelp.org Donor Closet
A Wonderful Resource!
The purpose of the "DONOR CLOSET" is to recycle used DURABLE MEDICAL EQUIPMENT (DME) & MOBILITY EQUIPMENT from people who no longer need or use the item. Many have up-graded, moved on to a more useable item, or otherwise no longer require the item. They donate the item to a person who needs it and has no financial means of purchasing it, or has been denied by an insurance company or government agency. [More]
MS Learn Online
Providing quality information and convenient access
Since its first broadcast in 1999, MS Learn Online, the National MS Society's Internet program, has been a successful way to educate about multiple sclerosis. View pre-recorded webcasts to learn more about MS from the convenience of your own home. Programs cover a wide variety of topics such as information for people newly diagnosed, MS basic facts, symptom management, employment, intimacy, care-partners, and progressive MS.
Each program may include:
New MS Learn Online webcasts are also available as podcasts. [More]
- Audio broadcast
- Slide presentation
- Program transcript (PDF format)
- Technical support instructions
- Additional resources
Managing MS and Another Condition
Don’t assume that everything is related to your MS.
Get the right people on your medical team.
Keep your priorities straight.
Make sure each of your doctors has a complete list of everything you are taking.
When coordinating your own care gets too complicated, ask for help.
MS isn’t always the only health problem a person has to manage — another condition could have preceded the MS
or appeared well after the MS diagnosis. [More]
Relationships and Disability
Kim Forcier, a private
practice counselor in San Antonio, Texas, talked to the MS/Cancer Support Group
about potential problems between spouses and their partners who need caregiving.
Forcier has worked with many
couples dealing with new ways of life because of illness, brain injury, or
stroke. She noted that couples can work together to overcome difficult life
When a person has significant
health challenges, it becomes a huge part of his or her life. There may be certain
things that person can’t do and that affects every day life. It is easy to get
caught up with what you can’t do.
However, your health doesn’t
have to define you,” Forcier said. “Focus on what you can do and put your
effort in to that.”
One sign of a healthy
marriage is when both partners have some independence and to have separate
Improve inflammation through diet
Dr. Merry Harris, a chiropractic neurologist in Seattle, addressed the MS/Cancer support group members about the importance of maintaining a healthy diet and brain balance to help with multiple sclerosis (MS) symptoms. Dr. Harris has been in private practice since 1995 and focuses on neurological issues.
Let’s get physical
Exercise is important for everyone’s health, including those
with Multiple Sclerosis (MS) and cancer.
Jason Geroianni is a neuro-fitness specialist and executive
director of Pressing On, which is a non-profit gym in San Antonio, Texas, that offers
specialized exercise-based training program for those with paralysis due to spinal
cord injury, traumatic brain injury, MS, stroke and other physical
Geroianni said, “It always is important to stay active. We
recommend that people with MS and cancer exercise or be active 30 to 60 minutes
a day, five days a week.”
People who exercise regularly may notice several benefits including
improved strength, possible diminished fatigue and depression, help with sleep problems
and keeping mentally sharp.
However, MS patients need to be careful during exercise. [More]
Small Trial Shows Estriol, A Pregnancy Hormone,
Reduces MS Lesion Activity In Women With MS
Summary: In a small-scale, early-phase trial of the hormone estriol, a form of estrogen, women with relapsing-remitting MS showed decreases in MRI-detected brain lesion activity and immune responses during treatment, suggesting that additional study of estriol is called for to determine longer-term efficacy and safety.
- Women who have MS and are pregnant often experience fewer MS symptoms and relapses, especially during the second and third trimester. Because the hormone estriol is elevated during later stages of pregnancy, and mice given pregnancy levels of estriol were shown to have fewer symptoms of an MS-like disease, the hormone was considered as a candidate for testing against MS.
- Estriol was well tolerated. Six women with relapsing-remitting MS experienced significant decreases in brain lesion numbers and volume, as well as reductions in levels of immune proteins indicative of inflammation. [More]
CDC provides info about MS and Cancer risk
Dr. Matthew M. Zack of the Division of Chronic Disease and Health Promotion for the Centers for Disease Control and Prevention has provided extensive references from MEDLINE that show studies of the risk of cancer associated with multiple sclerosis since 1966. [More]