Newsletter - NewsWorthyhttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthyen-us2018-12-16T01:11:49.684245-06:00Spanning a Decade: Summary of Progress in MShttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=849/26/2018 12:00:00 AM<style class="WebKit-mso-list-quirks-style"><!--/* Style Definitions */ p.MsoNormal, li.MsoNormal, div.MsoNormal{mso-style-unhide:no;mso-style-qformat:yes;mso-style-parent:"";margin-top:0in;margin-right:0in;margin-bottom:10.0pt;margin-left:0in;line-height:115%;mso-pagination:widow-orphan;font-size:11.0pt;font-family:"Calibri",sans-serif;mso-ascii-font-family:Calibri;mso-ascii-theme-font:minor-latin;mso-fareast-font-family:Calibri;mso-fareast-theme-font:minor-latin;mso-hansi-font-family:Calibri;mso-hansi-theme-font:minor-latin;mso-bidi-font-family:"Times New Roman";mso-bidi-theme-font:minor-bidi;}p.MsoFooter, li.MsoFooter, div.MsoFooter{mso-style-priority:99;mso-style-link:"Footer 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l6:level1{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Symbol;}@list l6:level2{mso-level-number-format:bullet;mso-level-text:o;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:"Courier New";}@list l6:level3{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Wingdings;}@list l6:level4{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Symbol;}@list l6:level5{mso-level-number-format:bullet;mso-level-text:o;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:"Courier New";}@list l6:level6{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Wingdings;}@list l6:level7{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Symbol;}@list l6:level8{mso-level-number-format:bullet;mso-level-text:o;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:"Courier New";}@list l6:level9{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Wingdings;}--></style><p class="MsoNormal" style="margin-bottom: 0.0001pt; line-height: 22px;"><span style="font-size: 12pt; line-height: 24px; font-family: Arial, sans-serif;">Vicki Kowal, a Nationally Certified Counselor and a Licensed Mental Health Counselor in the State of New Mexico, gave a detailed overview and detailed overview on the September MS/Cancer conference call of how&nbsp;</span><span style="font-size: 12pt; line-height: 24px; font-family: Arial, sans-serif;">multiple sclerosis</span><span style="font-size: 12pt; line-height: 24px; font-family: Arial, sans-serif;">(MS) treatments have advanced in the last 11 years.&nbsp;</span></p><p class="MsoNormal" style="margin-bottom: 0.0001pt; line-height: 22px;"><i><span style="font-size: 12pt; line-height: 24px; font-family: Arial, sans-serif;">&nbsp;</span></i></p><p class="MsoNormal" style="margin-bottom: 0.0001pt; line-height: 22px;"><i><span style="font-size: 12pt; line-height: 24px; font-family: Arial, sans-serif;">Her career at the National MS Society began in 2007 as an Information Resource Center (IRC) Specialist, which is known now as a MS Navigator.MS/Cancer Support Group discusses current MS researchhttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=825/24/2017 12:00:00 AM<!--[if gte mso 9]><xml> <o:DocumentProperties> <o:Revision>0</o:Revision> <o:TotalTime>0</o:TotalTime> <o:Pages>1</o:Pages> <o:Words>1538</o:Words> <o:Characters>8769</o:Characters> <o:Company>NW Venture Philanthropy 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Normal";mso-tstyle-rowband-size:0;mso-tstyle-colband-size:0;mso-style-noshow:yes;mso-style-priority:99;mso-style-parent:"";mso-padding-alt:0in 5.4pt 0in 5.4pt;mso-para-margin:0in;mso-para-margin-bottom:.0001pt;mso-pagination:widow-orphan;font-size:12.0pt;font-family:Calibri;mso-ascii-font-family:Calibri;mso-ascii-theme-font:minor-latin;mso-hansi-font-family:Calibri;mso-hansi-theme-font:minor-latin;}</style><![endif]--><!--StartFragment--><p class="MsoNormal" style="margin-top:6.0pt;margin-right:0in;margin-bottom:6.0pt;margin-left:0in;text-indent:.5in;mso-outline-level:2"><span style="font-family: Arial;">In May 2017, MS/Cancer members learned aboutthree studies conducted on patients with Multiple Sclerosis (MS) to help its membersstay current on MS research.<o:p></o:p></span></p><p class="MsoNormal" style="margin-top:6.0pt;margin-right:0in;margin-bottom:6.0pt;margin-left:0in;text-indent:.5in;mso-outline-level:2"><span style="font-family: Arial;">These stories are from the National MS Societywebsite and links are provided after each study.<o:p></o:p></span></p><p class="MsoNormal" style="margin-top:6.0pt;margin-right:0in;margin-bottom:6.0pt;margin-left:0in;text-indent:.5in;mso-outline-level:2"><b><span style="font-family: Arial;">&nbsp;</span></b></p><p class="MsoNormal" style="margin-top:6.0pt;margin-right:0in;margin-bottom:6.0pt;margin-left:0in;mso-outline-level:2"><b><span style="font-family: Arial;">StudyFinds That Cognitive Function in People with MS Improves with an Online ActiveCognitive Training Program<o:p></o:p></span></b></p><p class="MsoNormal" style="margin-top:6.0pt;margin-right:0in;margin-bottom:6.0pt;margin-left:0in"><span style="font-family: Arial;">May 22, 2017<o:p></o:p></span></p><p class="MsoNormal" style="margin-top:6.0pt;margin-right:0in;margin-bottom:6.0pt;margin-left:0in;background:white"><span style="font-family: Arial;">Summary<o:p></o:p></span></p><p class="MsoListParagraphCxSpFirst" style="margin-top:6.0pt;margin-right:0in;margin-bottom:6.0pt;margin-left:.5in;mso-add-space:auto;text-indent:-.25in;mso-list:l0 level1 lfo1;background:white"><!--[if !supportLists]--><span style="font-family: Symbol;">&middot;<span style="font-size: 7pt; line-height: normal; font-family: 'Times New Roman';">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span></span><!--[endif]--><span style="font-family: Arial;">In a trial funded by the National MS Society, researchersfound that a special online active cognitive training program improvedcognitive function in people with MS.<o:p></o:p></span></p><p class="MsoListParagraphCxSpMiddle" style="margin-top:6.0pt;margin-right:0in;margin-bottom:6.0pt;margin-left:.5in;mso-add-space:auto;text-indent:-.25in;mso-list:l0 level1 lfo1;background:white"><!--[if !supportLists]--><span style="font-family: Symbol;">&middot;<span style="font-size: 7pt; line-height: normal; font-family: 'Times New Roman';">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span></span><!--[endif]--><span style="font-family: Arial;">Participants included 135 people with any type of MS whowere experiencing some cognitive problems. They used the training program for60 hours over 12 weeks, in their own homes.<o:p></o:p></span></p><p class="MsoListParagraphCxSpMiddle" style="margin-top:6.0pt;margin-right:0in;margin-bottom:6.0pt;margin-left:.5in;mso-add-space:auto;text-indent:-.25in;mso-list:l0 level1 lfo1;background:white"><!--[if !supportLists]--><span style="font-family: Symbol;">&middot;<span style="font-size: 7pt; line-height: normal; font-family: 'Times New Roman';">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span></span><!--[endif]--><span style="font-family: Arial;">This was the largest, controlled trial that has tested abrain training program in people with MS.Important Nutrients in MS Managementhttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=813/22/2017 12:00:00 AM<!--[if gte mso 9]><xml> <o:DocumentProperties> <o:Revision>0</o:Revision> <o:TotalTime>0</o:TotalTime> <o:Pages>1</o:Pages> <o:Words>949</o:Words> <o:Characters>5410</o:Characters> <o:Company>NW Venture Philanthropy 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*/table.MsoNormalTable{mso-style-name:"Table Normal";mso-tstyle-rowband-size:0;mso-tstyle-colband-size:0;mso-style-noshow:yes;mso-style-priority:99;mso-style-parent:"";mso-padding-alt:0in 5.4pt 0in 5.4pt;mso-para-margin:0in;mso-para-margin-bottom:.0001pt;mso-pagination:widow-orphan;font-size:12.0pt;font-family:Cambria;mso-ascii-font-family:Cambria;mso-ascii-theme-font:minor-latin;mso-hansi-font-family:Cambria;mso-hansi-theme-font:minor-latin;}</style><![endif]--><!--StartFragment--><p class="MsoNormal"><i><span style="font-size:12.0pt;font-family:Arial">In our continuing effort to sharepertinent news about MS, the MS/Cancer Support Group featured this story duringour February 2016 members&#8217; monthly conference call.</span></i></p><p class="MsoNormal"><span style="font-family: Arial; font-size: 12pt;">This storywas published on the National MS Society website on December 22, 2016, and canbe found at www.nationalmssociety.org/About-the-Society/News/Detailed-Clinical-Trial-Results-Published-On-Ocrel.</span></p><p class="MsoNormal"><b><span style="font-size:12.0pt;font-family:Arial">Summary</span></b></p><p class="MsoNormal"><span style="font-size:12.0pt;font-family:Arial">Resultsfrom three clinical trials of the experimental therapy ocrelizumab have beenpublished, showing benefits in people with PPMS and RRMS and providingadditional details regarding effectiveness and safety, after preliminaryfindings were reported at medical conferences.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-family: Arial; font-size: 12pt;">The trialin primary progressive MS is the first large-scale clinical trial to showpositive results in people with PPMS. 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UnhideWhenUsed="false" QFormat="true" Name="Book Title"/> <w:LsdException Locked="false" Priority="37" Name="Bibliography"/> <w:LsdException Locked="false" Priority="39" QFormat="true" Name="TOC Heading"/> </w:LatentStyles></xml><![endif]--><!--[if gte mso 10]><style> /* Style Definitions */table.MsoNormalTable{mso-style-name:"Table Normal";mso-tstyle-rowband-size:0;mso-tstyle-colband-size:0;mso-style-noshow:yes;mso-style-priority:99;mso-style-parent:"";mso-padding-alt:0in 5.4pt 0in 5.4pt;mso-para-margin:0in;mso-para-margin-bottom:.0001pt;mso-pagination:none;font-size:11.0pt;font-family:Calibri;mso-ascii-font-family:Calibri;mso-ascii-theme-font:minor-latin;mso-hansi-font-family:Calibri;mso-hansi-theme-font:minor-latin;}</style><![endif]--><!--StartFragment--><p class="MsoNormal"><span style="font-size: 12pt;">Several members of MS/CancerSupport Group have had breast cancer in addition to multiple sclerosis (MS).Margaret Barney, facilitator for the group, led a discussion with theorganization&#8217;s members about breast reconstruction based on the followingarticle from the American Cancer Society.</span><span style="font-size: 12pt;">&nbsp;</span></p><p class="MsoNormal"><span style="font-size:12.0pt">This article is availableonline at www.cancer.org/cancer/breastcancer/moreinformation/breastreconstructionaftermastectomy/breast-reconstruction-after-mastectomy-toc.</span></p><p class="MsoNormal"><b><span style="font-size:12.0pt">Breast reconstruction options</span></b></p><p class="MsoNormal"><span style="font-size:12.0pt">Several types of breastreconstruction are possible for women who have had surgery to treat theirbreast cancer.Books about MS and Cancerhttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=783/23/2016 12:00:00 AM<!--[if gte mso 9]><xml> <o:DocumentProperties> <o:Revision>0</o:Revision> <o:TotalTime>0</o:TotalTime> <o:Pages>1</o:Pages> <o:Words>486</o:Words> <o:Characters>2775</o:Characters> <o:Company>NW 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Here is asummary of our discussion.Managing MS and Another Conditionhttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=727/20/2015 12:00:00 AM<div class="page" title="Page 1"><div class="section" style="background-color: rgb(100.000000%, 100.000000%, 100.000000%)"><div class="layoutArea"><div class="column"><p><span style="font-size: 13pt; font-family: ArialMT; color: rgb(84, 77, 70);">Overview</span></p><p><span style="font-size: 13.000000pt; font-family: 'ArialMT'; color: rgb(32.941180%, 30.196080%, 27.450980%)">Don&#8217;t assume that everything is related to your MS.<br>Get the right people on your medical team.<br>Keep your priorities straight.<br>Make sure each of your doctors has a complete list of everything you are taking.<br>When coordinating your own care gets too complicated, ask for help.</span></p><p><span style="font-size: 17.000000pt; font-family: 'Arial'; font-weight: 700; color: rgb(32.941180%, 30.196080%, 27.450980%)">Overview</span></p><p><span style="font-size: 11.000000pt; font-family: 'ArialMT'; color: rgb(32.941180%, 30.196080%, 27.450980%)">MS isn&#8217;t always the only health problem a person has to manage &#8212; another condition could have preceded the MSor appeared well after the MS diagnosis. 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She noted that couples can work together to overcome difficult lifesituations.</span></p><p class="MsoNormal"><span style="font-family:Arial">When a person has significanthealth challenges, it becomes a huge part of his or her life.Improve inflammation through diethttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=687/23/2014 12:00:00 AM<p class="p1">Dr. Merry Harris, a chiropractic neurologist in Seattle, addressed the MS/Cancer support group members about the importance of maintaining a healthy diet and brain balance to help with multiple sclerosis (MS) symptoms.Let’s get physicalhttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=673/26/2014 12:00:00 AM<!--[if gte mso 9]><xml> <o:DocumentProperties> <o:Revision>0</o:Revision> <o:TotalTime>0</o:TotalTime> <o:Pages>1</o:Pages> <o:Words>320</o:Words> <o:Characters>1825</o:Characters> <o:Company>NW Venture Philanthropy Foundation</o:Company> <o:Lines>15</o:Lines> 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l6:level9{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Wingdings;}@list l7{mso-list-id:1944920575;mso-list-type:hybrid;mso-list-template-ids:-593987936 67698689 67698691 67698693 67698689 67698691 67698693 67698689 67698691 67698693;}@list l7:level1{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Symbol;}@list l7:level2{mso-level-number-format:bullet;mso-level-text:o;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:"Courier New";}@list l7:level3{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Wingdings;}@list l7:level4{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Symbol;}@list l7:level5{mso-level-number-format:bullet;mso-level-text:o;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:"Courier New";}@list l7:level6{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Wingdings;}@list l7:level7{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Symbol;}@list l7:level8{mso-level-number-format:bullet;mso-level-text:o;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:"Courier New";}@list l7:level9{mso-level-number-format:bullet;mso-level-text:?;mso-level-tab-stop:none;mso-level-number-position:left;text-indent:-.25in;font-family:Wingdings;}ol{margin-bottom:0in;}ul{margin-bottom:0in;}--></style><span style="mso-bidi-font-family:Arial">Director ofAdvocacy at the Greater Northwest Chapter of the National Multiple Sclerosis(MS) Society Jim Freeburg is educating people about the many advantages of theAffordable Care Act (ACA), including people who have MS.</span><p class="MsoNormal" style="mso-pagination:none;mso-layout-grid-align:none;text-autospace:none"><span style="mso-bidi-font-family:Arial">&nbsp;</span></p><p class="MsoNormal" style="mso-pagination:none;mso-layout-grid-align:none;text-autospace:none"><font face="Times"><span style="mso-bidi-font-family:Arial">During the MC/Cancer telephone support group meeting on September 25th Freeburg said, &#8220;Theexisting health care industry in this country is badly broken for people withchronic diseases, is not available for everyone and is not coordinated. Thoseare some of the many reasons why the reformed health care law was enacted in2010.&#8221;</span></font></p><p class="Default"><span style="font-family:Arial;color:windowtext">&nbsp;</span></p><p class="Default"><font face="Times"><span style="color: windowtext;">Universalcoverage is important because everyone becomes ill at some point.Service dogs help with day-to-day livinghttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=646/26/2013 12:00:00 AM<p class="MsoNormal">MichelleMunro serves as president of the board of Summit Assistance Dogs, and owning aservice dog has changed her life.</p><p class="MsoNormal"><o:p></o:p></p><p class="MsoNormal">TheAmericans withDisabilities Act (ADA) defines a service animal as a dog that is individuallytrained to do work or perform tasks for a person with a disability.Many MS patients can travel the worldhttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=625/22/2013 12:00:00 AM<p class="MsoNormal">Italy. Australia.Tips to help with day-to-day livinghttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=604/24/2013 12:00:00 AM<div><span style="font-family: times;">MS/Cancer Support Group members recently tips on how to make some of life&#8217;s challenges a little easier in the April conference call.</span></div><div><font face="times"><br></font></div><div><font face="times">Margaret started the discussion by recommending InterDry, a moisture-wicking fabric with antimicrobial silver for the management of skin-on-skin irritation. InterDry helps minimize the itching and odor from yeast and bacteria, wicks assay moisture in skin folds and relieves burning and chafing from skin-on-skin friction.</font></div><div><font face="times"><br></font></div><div><font face="times">One caller said she had bars installed at the head and foot of her bed.MS patients may benefit from hippotherapyhttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=613/27/2013 12:00:00 AM<p class="MsoNormal">[Speaker for the March 27, 2013, meeting was Heather Daley,owner of the <a href="http://www.healingheartsranch.info/heartstrides.htm" target="_blank">HeartStrides Stables</a> in Olympia, WA. The MS/Cancer telephonesupport group meeting is co-sponsored by the National MS Society and theAmerican Cancer Society.Physician reports on colorectal cancer to MS/Cancer SHGhttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=582/27/2013 12:00:00 AM<div><span style="font-family: times;">Dr. Cathy Eng spoke to the MS/Cancer SHG members on their monthly conference call about screening, diagnosis and treatment of colorectal cancer.</span></div><div><font face="times"><br></font></div><div><font face="times">Dr.Latest Developments in Breast Cancer Treatmenthttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=561/23/2013 12:00:00 AM<div><span style="font-family: times;">MS/Cancer SHG members started the new year learning about the latest developments in breast cancer treatment.</span></div><div><font face="times"><br></font></div><div><font face="times">Dr. Banu Arun spoke on the conference call about the risk, diagnosis and update on breast cancer treatment.MS: Disease Management and Therapeuticshttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=547/25/2012 12:00:00 AMDr. Louisa Lavy, a neurologist specializing in Multiple Sclerosis (MS) at the Kootenai Medical Center in Coeur d'Alene, ID, spoke to MS/Cancer Support Group members about drug therapies for MS and why it is important to take charge of your disease.MS and managing heat-related symptomshttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=536/27/2012 12:00:00 AMMS/Cancer support group members learned to keep cool with advice from Angel Chapman, client service consultant for the Multiple Sclerosis Association of America (MSAA).<p>Chapman said, "Many people with multiple sclerosis are heat sensitive, and heat and humidity can aggravate some MS symptoms.Deciphering Medicare Coveragehttp://msplus.org/default.aspx?act=newsletter.aspx&category=NewsWorthy&newsletterid=525/23/2012 12:00:00 AMMedicare coverage can be confusing. 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Normal";mso-tstyle-rowband-size:0;mso-tstyle-colband-size:0;mso-style-noshow:yes;mso-style-priority:99;mso-style-parent:"";mso-padding-alt:0in 5.4pt 0in 5.4pt;mso-para-margin:0in;mso-para-margin-bottom:.0001pt;mso-pagination:widow-orphan;font-size:10.0pt;font-family:"Times New Roman","serif";mso-fareast-language:JA;}</style><![endif]--><p class="MsoNormal">Laura Ng, an oncology pharmacy resident at The University ofTexas MD Anderson Cancer Center in Houston, advised the MS/Cancer TelephoneSupport Group on how to manage diarrhea while undergoing chemotherapy treatment.Ng is training to work with people with cancer andcancer drugs.