NARCOMS Patient Registry helps research, patients

On the February MS/Cancer support group conference call, participants learned about the North American Research Committee On Multiple Sclerosis (NARCOMS) Project, what services it provides and the need for MS patients to participate.  This self-help support group is sponsored by the National MS Society and the American Cancer Society.

 

Dr.[More]
 

Maxine Mesinger Clinic lobby


Maxine Mesinger Clinic lobby

MS/Cancer conference call spotlights social services

Vanny Soeung spoke on the January MS/Cancer monthly telephone conference about her role as a social worker at the Maxine Mesinger Multiple Sclerosis Clinic at Baylor College of Medicine in Houston, Texas. She described her work and the clinic services for MS patients.

 

Soeung's role is to help patients with schedules, their diagnosis, during doctors' visits, addressing their needs and getting consultations from the doctors.[More]
 

Exercise, movement topics for June conference call
Melissa Pei, DPT, MSCS, was the guest speaker at the June conference call for the MS/Cancer teleconference support group. Pei works at the Evergreen Healthcare Rehabilitation Department in Seattle with MS patients and patients who have other neurological diseases like Parkinson's disease, stroke and head injury.[More]
 
  Resource Spotlight
MSHelp.org Donor Closet
A Wonderful Resource!
The purpose of the "DONOR CLOSET" is to recycle used DURABLE MEDICAL EQUIPMENT (DME) & MOBILITY EQUIPMENT from people who no longer need or use the item. Many have up-graded, moved on to a more useable item, or otherwise no longer require the item. They donate the item to a person who needs it and has no financial means of purchasing it, or has been denied by an insurance company or government agency.[More]
 
MS Learn Online
Providing quality information and convenient access

Since its first broadcast in 1999, MS Learn Online, the National MS Society's Internet program, has been a successful way to educate about multiple sclerosis. View pre-recorded webcasts to learn more about MS from the convenience of your own home. Programs cover a wide variety of topics such as information for people newly diagnosed, MS basic facts, symptom management, employment, intimacy, care-partners, and progressive MS.

Each program may include:

  • Audio broadcast
  • Slide presentation
  • Program transcript (PDF format)
  • Technical support instructions
  • Survey
  • Additional resources
New MS Learn Online webcasts are also available as podcasts.[More]

 
 
  NewsWorthy
Managing Diarrhea and Chemotherapy

Laura Ng, an oncology pharmacy resident at The University of Texas MD Anderson Cancer Center in Houston, advised the MS/Cancer Telephone Support Group on how to manage diarrhea while undergoing chemotherapy treatment. Ng is training to work with people with cancer and cancer drugs.  The call is sponsored by the National MS Society and the American Cancer Society.

Ng said, "We define diarrhea as more than one liter of liquid stool in one day. If you produce more than one liter of diarrhea in 24 hours, contact your health-care provider."

 Chemotherapy can destroy the cells in the intestines and damage or change the intestinal enzymes, thus interfering with absorption.[More]
 

MS/Cancer support group discusses preventing falls
For a person with MS, the risk of falling is increased because of mobility problems. The MS/Cancer support group explored the prevention and consequences of falls during their February conference call. The call is sponsored by the National MS Society and the American Cancer Society.

The National MS Society supplied each member with the book, Minimizing Your Risk of Falls: A Guide for People with MS, by Debra Frankel. Participants also received a DVD: Free from Falls, a comprehensive prevention program for people with MS.[More]

 
  Medical
Small Trial Shows Estriol, A Pregnancy Hormone,
Reduces MS Lesion Activity In Women With MS

Summary: In a small-scale, early-phase trial of the hormone estriol, a form of estrogen, women with relapsing-remitting MS showed decreases in MRI-detected brain lesion activity and immune responses during treatment, suggesting that additional study of estriol is called for to determine longer-term efficacy and safety.

  • Women who have MS and are pregnant often experience fewer MS symptoms and relapses, especially during the second and third trimester. Because the hormone estriol is elevated during later stages of pregnancy, and mice given pregnancy levels of estriol were shown to have fewer symptoms of an MS-like disease, the hormone was considered as a candidate for testing against MS.
  • Estriol was well tolerated. Six women with relapsing-remitting MS experienced significant decreases in brain lesion numbers and volume, as well as reductions in levels of immune proteins indicative of inflammation.[More]
     

Nerve Conduction & Research of Dr. Stephen Waxman
by Diane O’Connell, InsideMS
Winner of the prestigious 2002 John Dystel Prize for MS Research unravels basic nerve functions to set the stage for nerve repair. Click here to read the article.
 

CDC provides info about MS and Cancer risk
Dr. Matthew M. Zack of the Division of Chronic Disease and Health Promotion for the Centers for Disease Control and Prevention has provided extensive references from MEDLINE that show studies of the risk of cancer associated with multiple sclerosis since 1966.[More]
 

 

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